Neurofibromatosis (NF) is a genetic disorder of the nervous system characterized by tumors that can grow on any nerve in the body without warning. It is caused by a genetic mutation that occurs in 1 of every 2,500 births.

There is no cure for NF, and there are currently no treatments available for the 140,000 living with it. Annually, federal funding (through a Department of Defense program called the NF Research Program) totals approximately $15 million. While this funding, along with funding directly from NF support organizations around the country, is invaulable, it is sadly not enough to provide what is necessary to really make headway towards a cure.

The key to truly making a difference in the lives of those living with NF and the efforts to increase funding for research is AWARENESS. That is why we created The Giving Selfie.

Using the power of social media, The Giving Selfie has the potential to raise awareness for Neurofibromatosis on a huge scale, teaching tens of thousands (or more) about this insidious disorder as well as encouraging new supporters to help fund the search for a cure.

For questions about The Giving Selfie and how you can get involved, please contact us at

NF Network Logo

Doodle 4 NF was an annual fundraiser for the Neurofibromatosis Network. Autographed Celebrity Doodles were collected year-round and offered for sale during a 10-day auction each May. Before COVID, Doddle 4 NF clebrated its final year. It made a huge difference for the NF community. Check out the collection of doodles that were sold over the years at

NF Network Logo

Neurofibromatosis Network was founded in 1988 as a 501(c)3 non-profit organization to join together several independent state and regional NF groups wishing to work together on national projects. The Mission of the NF Network is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF. Visit NF Network's website for more information about NF and how you can help.

NF Hope Concert Logo

The NF Hope Concert was founded in 2011 to raise awareness and much needed financial support for NF advocacy and research programs. Since it's inception, the concert has raised over $1.3 Millioin and taught several thousand people about Neurofibromatosis. The concert began in Las Vegas, NV and after more than ten years continues to bring together the city's top headliners for an afternoon of entertainment and information. In 2017 and 2018, the concert expanded into New York City and Chicago! To find out more about the NF Hope Concert to how to be a part of it.